安寧療護視域下臨終兒童死亡價值意蘊與意義探尋

[中圖分類號]R-052 [文獻標志碼]A [文章編號]1001-8565（2025）07-0949-06

DOI：10.12026/j.issn.1001-8565.2025.07.21

Abstract： From the perspective of palliativecare，focusing on the entire processsurrounding the death of terminally ill hildren，with an emphasis onthe valueofdeath forchildren.Itexplores thechildren'sunderstanding ofdeath and the process of self-value pursuit，elucidating the construction of the value of death.Furthermore，it interprets the multifaceted implicationsof thevalueofdeath forchildren from threedimensions：terminallillchildren，caregivers，and society.Additionally，itexplores theroleoftheconstructionofthevalueofdeathinachievingagooddeathforterminally ill hildren，optimizing care models，and acelerating the formation of a societal environmentof good death，as so to enhance contemporary society'sunderstanding and appreciation forthe value ofdeath forchildren，bridging the gap in pediatric pallativecareand providinga theoretical basis forimproving the qualityoflife for trminallyillchildren.

Keywords： palliative care;children;value of death;good death;quality of care

現(xiàn)代醫(yī)學科技驅(qū)動的極度理性的文化場域中，死亡被整合為一種技術或概念性問題，伴有明顯的“去人性化"的內(nèi)在特質(zhì)1，傳統(tǒng)的“慎死”觀念逐漸被異化為“忌死”和“諱死”，使得死亡的價值在當代社會共識中逐漸模糊2，對短暫生命的臨終患兒而言尤甚。（剩余10814字）